Cumbrian farmer’s life with ME/CFS featured in London exhibition
13th September 2025
The story of Cumbrian farmer, Andrew Jackson, who has lived with ME/CFS for over 13 years, has been captured and displayed in an evocative photography exhibition.
‘Lives We Cannot Live’, a new photographic exhibition by documentary filmmaker and photographer Jeremy Jeffs, and presented by The ME Association, reflects the stark realities of daily life for people living with ME/CFS through a collection of more than 50 striking images.
ME (myalgic encephalomyelitis), also known as CFS (chronic fatigue syndrome), is a multisystemic disease. Symptoms include profound fatigue, sleep disturbance, post-exertional malaise, cognitive difficulties and a range of other symptoms like pain, headaches, nausea and intolerance to lights and noise.
Andrew, 58, is a fourth-generation farmer who runs Littlebeck Farm, a 180-acre beef and sheep farm near Penrith. Following an agricultural accident, from which Andrew never fully recovered, and several hospital admissions and visits, he was diagnosed with ME/CFS 13 years ago.
While Andrew continues to work on the farm, his symptoms, including chronic pain and debilitating fatigue, are a significant barrier to daily activities and social interaction. He cannot manage many of the jobs he once enjoyed, such as clipping sheep, as he does not have the strength and is unable to physically hold the livestock.
Instead, Andrew puts the limited energy he has into running the farm and must pace himself with activities by taking regular breaks. Despite pacing, he can sometimes spend hours or days recovering from the impact that farm life takes on his body, both physically and mentally.
Raising awareness of the condition
Andrew is supported by his wife, Yvette, and son, Kieran, who both pitch in to ensure the farm runs like clockwork and make sure that Andrew does not overexert himself, which can cause post-exertional malaise, a delayed and significant exacerbation of ME/CFS symptoms.
Andrew, who hopes to attend the opening night of the exhibition, said: “As each year ticks by, I’m slowly getting weaker, experiencing the debilitating effects and exhaustion of ME/CFS. Yvette and I are keen to raise awareness of the condition, as there is a lack of understanding of what it’s like to live with ME/CFS.
“Being part of the ‘Lives We Cannot Live’ photography exhibition helps push ME/CFS into the public eye and raise the voice of people in the ME/CFS community; it’s something we feel very passionate about.”
The exhibition showcases the moving images of more than 20 people; some with ME so severely that they are confined to bed, some who are able to work part-time, and many others who struggle to simply keep up with a basic existence.
The images of Andrew reflect his day-to-day experiences on the farm, along with a compelling shot of Andrew lying in a darkened, empty room, which is part of his routine to help manage symptoms.
The ‘Lives We Cannot Live’ photography exhibition will be held at Oxo Gallery, Oxo Tower Wharf, Bargehouse Street, South Bank, London, SE1 9PP from Wednesday 24th September until Sunday 28th September 2025. The event is open daily between 11 am and 6 pm; admission is free.
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